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A bunch of randomness

The brain is not functioning on all cylinders right now. However, I wanted to share out some quick randomness that is floating around up there. Hope you enjoy. 

Random thoughts
– I wish that my Fitbit was tapped into my MS. That way it would understand that just running errands today hit my limit. Like a “spoonbit”, someone needs to invent this! And when you hit your limit it shocks you so that you know to go take a nap!

– The left side of my body has decided to revolt. Bastard! It feels like I have a full arm weighted sleeve on and the same on my left leg from knee down. 

– Today started out as an absolute nightmare. I woke up at 3:30am with an insane migraine. I stumbled to the kitchen and took an imitrex, then went back to bed. At 7am I decided it was time to give up on that working. I woke my boys up in the usual fashion. I’m such a lucky mom. I give them big hugs, even my ginormous 14 year old and a kiss on the cheek. To which they wrap their arms around me and tell me they love me. Again, so lucky! I tell them if they can be ready in 20 minutes I’ll take them to D&Ds for breakfast. Then I threw jeans on and stumbled to the living room couch after taking 2 excedrin. The boys were ready in 10 minutes. Shocker. The promise of donuts will do that. So I grab a large plastic cup, just in case I don’t make it, and we head out. D&Ds is thankfully really close to my house and set up more like a cafe. So we get our breakfast and settle into some comfy leather chairs. Conversation is always entertaining with my boys. We are doing a relay for life tonight and I was trying to convince them to wear tutus. They refused. 😦 even after I told them I found some in camouflage green. Sad times. They also said I wasn’t allowed to get one for their father. They ruin all of my fun. 😉 Then when I was dropping my little one off at his school the principal was in the car line with a sign that said “Folwell’s future is Bright! Flash your lights for a Bright future!” To which of course we all did. So all of these things turned my crappy morning around really fast. I am so grateful for that. It is always the little things. 🙂

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Posted by on October 14, 2016 in Life with MS

 

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Sight

20/25 20/30
Can you believe it?!?!
I get excited that I can tell there are letters. Honestly, I get excited that I can see more than just a large white square! But 20/30? That’s nuts! It’s a miracle!

Yeah, so today was my follow up visit with the eye doc. I haven’t been wearing my contact as often as I should. So I walked into this appointment not expecting much. I certainly wasn’t expecting my vision to be even better than last time. Only by 2 lines, but wow! 

The Doc said that it probably won’t get better than it is now because of the nature of the scar. To which I said, um, I went from 20/260 to 20/30. That’s a miracle. I’m good! 

Of course there are slight set backs. There is so much more visual stimulation when I have my contact in that it really wreaks havoc with my brain. I’d say it cuts my spoon supply in half. 

*If you don’t know what that means read this; Spoon Theory.”

It is still totally worth it for me to wear it though. With it in I have normal vision. I am still getting used to using my right eye. It feels very unnatural. When something comes into my field of vision on the right side it still freaks me out. Depth perception is no longer my friend. I was so used to only using my left eye, I had adjusted. But now that I’m using my right eye I can’t judge distance. Then I take my contact out and my brain keeps using my right eye and I feel like I’m blind. So mental adjustments need to be made. It takes a little while either way right now. I’m afraid that with more frequent use I’ll really have problems when I don’t have the contact in. 

But just like Tysabri this is my momentary band-aid and I’m loving it! 

Normal vision. Ha! I love it! 

 

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Where’d the Spoons go?!?

Today I used up absolutely every one of my spoons. I believe that I also borrowed half of tomorrow’s. 😦
Believe I’ll spend the day on the couch tomorrow. Then Tuesday is Infusion day!

If you are right now saying “Spoons?!? What is she talking about?” then please read this. It is very well explained here how unmedicated MS life is. Thankfully I only have to deal with it for a couple of days a month. Because goodness it is not fun. Nor are the comments from people like “What do you mean your tired already? We haven’t done anything yet.” Maybe I’m just setting the bar too high for the days in between. Oh well. I have no intention of changing. 😉

 
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Posted by on July 15, 2012 in Life with MS

 

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