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Tag Archives: MS fatigue

A bunch of randomness

The brain is not functioning on all cylinders right now. However, I wanted to share out some quick randomness that is floating around up there. Hope you enjoy. 

Random thoughts
– I wish that my Fitbit was tapped into my MS. That way it would understand that just running errands today hit my limit. Like a “spoonbit”, someone needs to invent this! And when you hit your limit it shocks you so that you know to go take a nap!

– The left side of my body has decided to revolt. Bastard! It feels like I have a full arm weighted sleeve on and the same on my left leg from knee down. 

– Today started out as an absolute nightmare. I woke up at 3:30am with an insane migraine. I stumbled to the kitchen and took an imitrex, then went back to bed. At 7am I decided it was time to give up on that working. I woke my boys up in the usual fashion. I’m such a lucky mom. I give them big hugs, even my ginormous 14 year old and a kiss on the cheek. To which they wrap their arms around me and tell me they love me. Again, so lucky! I tell them if they can be ready in 20 minutes I’ll take them to D&Ds for breakfast. Then I threw jeans on and stumbled to the living room couch after taking 2 excedrin. The boys were ready in 10 minutes. Shocker. The promise of donuts will do that. So I grab a large plastic cup, just in case I don’t make it, and we head out. D&Ds is thankfully really close to my house and set up more like a cafe. So we get our breakfast and settle into some comfy leather chairs. Conversation is always entertaining with my boys. We are doing a relay for life tonight and I was trying to convince them to wear tutus. They refused. 😦 even after I told them I found some in camouflage green. Sad times. They also said I wasn’t allowed to get one for their father. They ruin all of my fun. 😉 Then when I was dropping my little one off at his school the principal was in the car line with a sign that said “Folwell’s future is Bright! Flash your lights for a Bright future!” To which of course we all did. So all of these things turned my crappy morning around really fast. I am so grateful for that. It is always the little things. 🙂

 
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Posted by on October 14, 2016 in Life with MS

 

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No more Napping for Me!

I am constantly surprised that you don’t realize how bad you are until you are better.

I have been in such a brain fog for the last couple of weeks. I didn’t even realize it until yesterday. When finally I could actually get things done without needing a nap every couple of hours. I hate feeling like that. So much so that I’m thinking of starting to take Wheat Grass. AH!

I would be doing fine. Walking through my house just thinking about what I am doing at that moment. Then one of the kids, or Rich, would ask me something. Not even a big something. Just a simple question, “Mom can I have a drink?” “What do you want to have for dinner?”. Then my head would go into a tail spin. Literally it felt like there was a whirlwind of activity in my brain. I couldn’t focus. I could picture a vast space where my brain should be with things whirling around as if in a cyclone. Books and wooden chairs and desks all swirling around. Nothing made sense and all I did was get angry and all they did was get angry at me for not being able to answer the simple question. So of course it didn’t get better, it got worse.

And then I would need a nap. All because someone asked me for a drink.

That has been my brain for about the last month.

Now that I am feeling better. For two days. 🙂 I am finally getting things together. Lists are being made. The house is getting cleaned. The kids homework is getting done and their table manners are going back to normal. I’m not saying I expect perfection from them, but I expect perfection from them. 🙂

It is like nothing gets done in this house when I am out of commission. I come back to normalcy (kind of) and the house is a disaster and the kids are totally out of whack. And now I think that it is going to take a couple days to get things back to normal. That is my goal. Normal. Seems like an easy thing to aspire for.

Christmas is coming and my schedule is mayhem. Like the commercials. They are already laughing at me. I have come to the point where all weekends are booked and I’m starting to fill up my week days. December is going to be crazy and I need my brain to be firing on all cylinders.

 
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Posted by on November 29, 2012 in Life with MS

 

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Tired

There are many different forms of tired.

There’s what I like to call “normal person tired” which is when you feel you have done enough and really just want to chill out for a while. With this tired if you still had things you needed to do you could still do them. Maybe begrudgingly, but still physically capable. A lot of people actually end up getting a “second wind”.

Then there is something else that I have experienced. I call it “new mom tired”. (anyone who has ever used the term “slept like a baby” never met my kids) Of course this form of tired applies for any reason that you aren’t getting any sleep. Every night feels like a huge struggle. You know that you aren’t going to get any sleep, so you try all sorts of different tricks to make it through and each night is a different strategy. Yes, with this tired you are dragging, but could easily perk yourself up if necessary and still totally capable of functioning. Deliriously at times, but still walking and talking and hopefully not making big decisions. = )

Within the last year I have learned a new kind of tired. I really did think that the “new mom” tired was going to be the worst that I would ever experience. I was wrong. Now I have “MS tired” to add to the list. Well maybe not add so much as replace since I am done with the baby scene. So until I am pulling all-nighters because of school, I should be good in that department.

“MS tired” is a strange feeling. I have read a lot of different accounts on what this means to other people. For me it is like being trapped in smoke. I start to have a hard time breathing and I can’t think straight at all. Nothing feels real. It gets very hard to move, a lot of people have said that their legs feel heavy. For me it’s more like my brain has gotten heavy. Like I forgot how to walk. Like I have to remind myself to breath in and out. My brain just seems to loose functioning skills. Not to mention the fact that my eye sight also starts to be not quite as sharp as it should be. I believe that is the original holes showing themselves. Give me a good half hour to an hour to sit/lie down and my brain seems to come back to me, but the recovery ends there. I need a couple of hours of sleep now in order to fully function again. I am definitely done for the day after this.

The most frustrating part is that you never know when it’s going to happen. Some days I can do lots of things and have absolutely no problem. Then other days all it takes is for me to do a little bit of wash and then the rocking starts again and god forbid I don’t heed the warning and slow down. Otherwise the next thing you know I’ll need another 3 hour nap when what I really need to be doing is hopping in the car to pick my son up from school. Really, where is my chauffeur when I need him?

I wish they made an energy drink for this type of tired.

 
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Posted by on September 12, 2011 in Life with MS

 

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