Tag Archives: mri

Colors and Detail oh my!

I have failed at my 30 day writing challenge. 

Things got a little intense here in my town. I let small people’s opinions of me matter. There has been great growth and valuable lessons learned though. When you are in a position that puts you in the public eye there is always going to be someone that will dislike what you are doing. You need to roll with this and keep doing the good that you are attempting to do.

So that said, I am going to try to pick up the writing challenge again. But first I wanted to talk about my health. It has been AWESOME! And not so awesome.

My contact. Even though there are days that I forget to put it on, I love it. I can not stress enough how it has changed my life. 

The day that I finally got my correct lens was amazing! I had no idea that so many colors exist in the world. Or that everything has so much detail.

I had lunch that day at my in-laws house. They live in the middle of the woods. I had no idea that there were so many trees! And the different shades of green! Leaves! I have never been able to see all of the different leaves! And were you aware that clouds have definition? The things that I didn’t even realize that I couldn’t see that were now right in front of me was astounding! I was just a little bit excited. 🙂

Fast forward to my vacation to Disney world a few weeks later. 3D! Oh my goodness! Have you people seen this?!? Sure I’ve been to 3D movies before. I was never impressed. I always thought that people were exaggerating seeing things fly at them. Please people. But now I can see it too! If I could have spent my whole trip just doing 3D rides over and over again I would have. The people around me must have thought that I lived under a rock. With my “can you believe this? Those things were actually flying at us! And I swear I could touch Donald! (From the middle of the theatre).” Mickey’s philharmagic and Star Tours were my favorite! And Fireworks! Did I mention Fireworks?!?

On the flip side; wearing my contact wreaks havoc with my brain. Talk about over stimulation. So the boat is back to rocking on a regular occasion. 
The last couple of months have been a lot for me. It was all of course worth it, with all of the holiday events. My body gave up on me though. The day after Christmas, after showering, I walked into my room to get something. 2 hours later I woke up. 😦 I slept for the next 3 days. 

I had my yearly MRI right before Christmas. Those results should be coming in soon. I’m sure they will say that I have no new lesions. Yet a significant amount of the old ones are active. I keep having nightmares that they are going to put me back on solumedrol. You know all I really need is some rest. Not more drugs. So I’m continuing to take advantage of my week off. Praying that by the end I can comfortably get back to work. Here’s to dreaming!

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Posted by on December 30, 2015 in Life with MS


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Today is MRI number I can’t remember anymore.
I know that already existing lesions have been active recently. I often have a hard time finding the right word, or stringing a sentence together in the right order. My pinky and ring finger on my left hand are partially numb as well as the top layer of skin leading up to my left elbow from said fingers. I shake uncontrollably when I’m cold. Probably the least of my issues is my left foot not always lifting up as far as I expect it to. I’ve had these issues for 3 years though. So I’m used to them. I am just hoping that this MRI turns up with no new lesions. I already lost my ability to fly. I’d hate to loose my ability to read minds. (Gray matter lesions)
My oldest is with me today. He is “home” sick. He got to go to my last infusion too. I’m slowly educating him on the crap that I have to go through. I wish he didn’t have a sick mom. But I need him to realize that it’s not that bad, and I’m ok. Today I didn’t bring him on purpose. He really is home sick, poor kid. But I guess this is probably good for him. He doesn’t seem to be fazed by medical things. No freaking out at needles or anything. Just let the doctors do there job. It’s good that he’s strong like that for the future. Plus he’s getting in some mad reading time! 🙂

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Posted by on December 15, 2014 in Life with MS