Tag Archives: Insomnia

Who needs sleep?

I remember a very brief time in college that I was very depressed. It was horrible and lonely and there was absolutely no excuse for it. I have always had a wonderful, charmed life. Yet there it was. Favorably is not exactly how I looked back at that time. I have a tendency to joke about it. I was at my thinnest back then. Who doesn’t want that? I wasn’t eating & I went for 7 mile walks every day. Healthy, I know. The walks were my happy place. On the boardwalk in LongBranch. The beach can do wonderful things to ones psyche. And when you have sleep ready to enfold you in it’s velvetty darkness, who needs food?

These days, however, it’s a different story. I am finding myself looking back at that time with a tinge of jealousy. That was when I had the best sleep of my life. 

I could sleep at any time of day. I never had a problem sleeping through the night. I could have easily slept through an entire day. Hell, I could have slept through an entire week! 

Then, there is now.

Now I can’t sleep through the night 2 nights in a row. I’m lucky when I get a full night of sleep multiple nights a week. When I do finally get a great night of sleep, I wake up knowing that I will pay for it the next night. 

Maybe I used up all my sleeping back in college. 

I read on the numerous MS feeds that I follow that lack of sleep is common with us MS warriors. Why is that? We are tired most of the time. You would think that at night we would sleep! But no. I go to bed early because I’m tired and then I wake up in the middle of the night. Wide awake. Writing a blog. I just don’t see the correlation to the holes in my brain. We work harder all day, every day, to do things that healthy people take for granted. Like showering. 😦 This should make us more tired. And it does! I could take a healthy 20 minute nap after I shower. Every. Time. Of course, no one has time for that. So why doesn’t our body just store up that fatigue so that we can use it at night? Instead we have to take naps during the day, just to make it through. We should be able to skip the nap and sleep through the night. I am sad to tell you though, this is not how it works.

A little while ago, when I was having really bad toe cramps, I understood the non sleeping. You can’t sleep when you are in pain. I get that. A lot of us go through having chronic pain, or just inappropriate outbursts of it at inappropriate times. Like when we should be sleeping. That makes sense to me. However, right now I have no pain. Just irritation. 

I would hate to have to add yet another pill to the pile. I believe that it is now time to go back to the research. How can I (Don’t shoot me for saying this. I’m already cringing internally.) naturally & holistically find a way to get better sleep? 

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Posted by on September 20, 2016 in Life with MS


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1 Less Hand Grenade

Well day 2 mostly down. Today has been very easy. I have been tired, but other than that fine.

Last night was like a nightmare however.

They say not to drink alcohol while on Solu-medrol. I am here to tell you that you should heed their warning. It is no joke!

All I had was one glass of wine and I felt horrible. I started to have bands on numbness on both arms. It started soon after the wine and ended somewhere around 2am. It wasn’t just numbness either. Towards the end of the night it started feeling like I had long gloves on that were about 5 sizes too small. Like I was being squeezed relentlessly. I did not enjoy this.

Then there was the headache. That was really bad. And of course I made it worse by not taking anything until it was way later than it needed to be. I was so nervous about mixing my new momentary drugs (more the Heparin than the Solu-Medrol) with my Imitrex that I didn’t take it until about 5 hours into the headache. So that didn’t go away until about 3am. And then for some reason I couldn’t even sleep after it was gone. I was just lying there staring at the ceiling. I kept telling myself that I was comfortable I should be sleeping now. It didn’t matter. I did manage to rebuild my entire house in my head though. AH, the things I would do if I won the lottery. 🙂

Then this afternoon, since I didn’t sleep last night, I tried to take a nap. That didn’t work either. I just lay there. Comfortable and with my eyes closed, but no sleeping.

So that leads me to this question: Is Insomnia a side effect of Solu-Medrol? And if it is, is it ok for me to take some kind of a sleeping aid? Because if I go one more night without sleep it’s not going to be pretty. I fear for all who will have to associate with me.


Posted by on October 27, 2013 in Life with MS


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