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Not so quick medical update

Yeah! I’m back in the chair!
My favorite nurse isn’t here. What can you do? I’ll take the good with the bad.

So quick medical update. I have another eye doctor appointment today. As well as my infusion which I am currently at. So I am going to end up spending a lot of time on the road. Why can’t all of my specialist be closer to my house? I should have just taken the kids out of school. Because while the docs are no where near where I live they happen to be down the road from each other. Ah, well, I’m trying to be a good mom. It’s a good thing I like driving.

They took more blood today. I’m being tested again for the JC Virus antibodies. Keeping our fingers crossed that it is still negative.

On the eye; I’m not sure what the last thing I said was. The beast has gone back into it’s hole. However, while the medicine was attacking it was also preventing my eye from healing. The doc put me on super strength “visine” type drops. Apparently there was now just a giant hole in my Cornea where the beast was taking up residence. The last time that I went to the doc he said that it had healed 95%. 95%! *said with exasperation” “so come back in 2 weeks”
I was like “doc, this is costing me $30 every time that I come. Can’t we just say that it is 100%?”
Then I got the “well don’t you want to be sure so that we can schedule the surgery?”
UHG!
Yes. Fine.
So I am headed back there today. Hopefully I am at 100%. Then we can start scheduling things for the surgery. Doc said a meeting in September to make sure that all is still well with my eye. Then I get put on the transplant list and I just have to wait for an eye to become available. Yes, I know what that means. I am actually waiting for someone to die. They say that it’s not like waiting for an organ though. I can use anyone’s. There are no compatibility issues because there are no blood vessels in the cornea.

I told my little brother that after the surgery he is going to have to stop making fun of me. No more cyclops jokes. He said oh no, now a whole new possibility of jokes come up.
“I see dead people!” As he is cracking up.
I can’t win.

Sent from my iPhone

 
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Posted by on April 1, 2014 in Life with MS

 

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Good Day

You know that song? The one with the line “You don’t know you’re high until you’ve been low”? Well, truer words have never been spoken. And since I feel “low” most of the time, the “high” is incredible for me! Today I have been dancing and singing around my house cleaning up a storm. Literally. An awesome storm rolled through. There is nothing like a good thunderstorm when you are feeling good to just make your day.

I am ridiculously excited about having the eye surgery. I still need to do more research. After my appointment this week though I have a little bit of knowledge:

  1. They sew the new cornea onto your eye. That sounds super scary.
  2. My Doc refuses to put me to sleep for the procedure. Oh and yeah I begged. Warned him that I may screw it up if I am coherent. He was confident that I would do fine. But again… SUPER scary. All they do is give you local anesthetics and a mild sedative. AAAHHH!!!! Ok, don’t think about it. The end result is too important!

I also realized another benefit. I could wear make-up. I know that that sounds strange, but try putting eye make-up on without looking. This is how I have to do my left eye. It never turns out good. So I just don’t do it. But when I have it professionally done for events I look HOT! So….. I’m excited about that. 🙂

At my last appointment the doc said that the virus isn’t gone yet. (I knew that) So he has me coming back in another 2 weeks. We are all hopeful that it will be gone by then. If it is then he is going to put me on a pill to make sure that it stays away for the next 6 months. Then we are hopeful for an August September surgery!!!!! It will be my birthday present. 🙂

Now I need to read up about recovery and what not.

Oh and other super good news? The surgery could/should totally cut the virus out of my eye! I may never have to deal with this again! *Insert me jumping up and down*

I decided that since we call MS the “MonSter” I’m going to refer to the virus in my eye as the Beast. That might make future blogs a little bit easier.

 

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