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Oh is it ever a new year!

So first, unofficial photo shoot under my belt. Weird. I am now a published writer. Ha! (Having nothing to do with the photo shoot, that was all about my husband. This is the life of the wife of a politician.) Ok, so all I did was write an article for our local town paper. But it’s out! It’s in people’s homes! Why, when I know that this blog has the ability to reach the entire world, am I so excited about an article that only reaches the members of my town? I don’t know. It’s something about seeing it in print. Something about seeing a title in a paper followed by my name. I love it!

There have been many other blogs, articles, that have talked about how people with MS’s life is split into two. There is the life that we started with, and then there is life after diagnosis. I have been thinking about this a lot recently. Yes, I am a little too familiar with some doctors now. But in truth, because of my right eye, I have always had issues. So all I’ve really done is add a new specialty. There are now new tests and I no longer have any issues with needles. I miss having issues with needles. I miss needles not being a common place thing in my life.

However, if you knew me before you may not even notice a change. My husband and kids notice a change, but random people that I see, let’s call them friends, probably wouldn’t notice. I myself have finally come to a point where I don’t see it as a before and after scenario. For the first year, ok 2 years, after diagnosis I was convinced that life would never be the same for me again. It didn’t help that I was on Copaxone, that wasn’t working and I had upwards of 9 new lesions at every MRI. But Tysabri has brought me back to life. No new lesions in 3 years. I’ll take it! Sure I still have issues from the previous ones. Those are things that are as of now unfixable. But I’m positive, I have put myself back out there in the world, my family is doing great, it’s a good new year! Now all I need to do is win the lottery so that I can go back to school. 🙂

 
 

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Is Snow good luck? I hope so!

It snowed this morning! Just enough to make everything white and beautiful. I think that it should do that every morning from now until March.

Today I’m back at the hospital. Just the infusion. No new catastrophes. I get my blood test back today. Hopefully that is good news. I don’t know what to do if they say that I have the JC Virus. Do I continue to risk my life on this drug? If I was still episode free I would say yes. Emphatically YES! I have felt so much better on Tysabri than I did on Copaxone. But i did have an exacerbation (I keep calling it different things because I don’t know what to call it). So if the test comes back positive is it still worth it? I don’t know. Hopefully it is a mute point. I’m just sitting here waiting for the news. Also to be hooked up. They are slow today. But my favorite nurse is back!!!! No needles in the hand for me today. 🙂
Of course on the way here I was thinking how it would be nice to avoid needles for a while. Maybe a bit longer than a couple of weeks. Wouldn’t that be nice?

My left leg from knee down still feels weak. I have been walking again though. I tried to do more strenuous exercise than walking but I only made it 10 minutes before the room started spinning. : ( I’ll try that again next week. Shaun T is going to have to wait.
My left thigh gets a hell of a work out with just walking though. About 2 miles in I start having to throw my leg forward to keep it going. Thank goodness it has still been holding me up though. No more falling for me! I hope, I hope, I hope.

Ah! Still no results. But at least I’m hooked up now. I’m off to loose myself in my book.

 
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Posted by on November 12, 2013 in Life with MS

 

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