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About

A couple of years ago I was diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS) and this turned my world upside down.

There are 2 tiny people in my life. Tyler and Noah, my boys who give me challenges and joys every day. I am lucky enough to live in a cute little historic town in New Jersey. My wonderful supportive husband and I have been together since HS. Through thick and thin we make life exciting together.

This blog is a sort of mental therapy for me. I have and will be posting my latest thoughts and random views on life and people in general. The trials and tribulations of living day to day with MS is what I talk about most. These seem to be some of my biggest challenges. My hope is that other people will read this and realize that on any given day everybody is dealing with their own crazy stuff. We need to just sit back and enjoy the ride sometimes.

Enjoy.

 

17 responses to “About

  1. Estizer A. Smith

    May 25, 2013 at 11:48 pm

    No, you’re not just talking to yourself 🙂 I’m listening and I agree!
    Estizer,
    http://www.msopenmic.com

     
  2. Meg Lewellyn

    May 28, 2013 at 3:35 pm

    Hi Janet,
    I recently started my own MS blog (a whooping 12 days ago) and have been slowly adding things to it. I came across your blog and would love to add it to my blogroll as I have found that we have a “similar outlook” on many things and would love for those that will begin to follow me, to be able to read other MS blogs. Wondering if it would be alright with you if I added BeingTooStrong to my short (but growing) list?
    Cheers!
    Meg

     
    • Janet DiFolco

      May 28, 2013 at 3:56 pm

      Thanks Meg! I would love that. I’m headed to your blog now. 🙂

       
  3. Meg Lewellyn

    May 28, 2013 at 4:07 pm

    just be forwarned, I am NOT always appropriate but never mean to offend:)

     
    • Janet DiFolco

      May 28, 2013 at 4:13 pm

      I love it! I can’t wait to hear all that you have to say! Your kids are beautiful and it’s nice to find someone that also finds the crap that we have to deal with amusing (most of the time). 🙂

       
  4. Meg Lewellyn

    May 28, 2013 at 4:20 pm

    Thank you! I am excited to at least be taking this step. Finished the book almost 3 years ago, and certainly divorce, returning to work full times after 14 years, single parenting AND falling in love have put constraints on my “free-time” but I think that it is more that I needed to make sure that people would want to read what I wrote, BEFORE doing a whole book thing:) Insecurities, they suck, but not much you can do.
    Not knowing ANYTHING about blogging is making it interesting, but figure at the end of the day, I can always ask my kids, cause they will probably know.

     
    • Janet DiFolco

      May 28, 2013 at 4:40 pm

      Wow you have been busy! Did you already write the book? I’d love to read it.

       
    • Janet DiFolco

      May 28, 2013 at 5:14 pm

      I love that you can ask the kids.
      Remember that the people that judge you are unfortunately the ones closest to you. When it comes to publishing a book that the masses are going to be able to read you end up having a lot of anonymity. So unless you wrote a teen novel about vampires you will probably get good/fabulous feedback. 🙂

       
  5. Meg Lewellyn

    May 28, 2013 at 4:52 pm

    It is written, BUT still in the needs edits stage. I have a friend that is a published author that has given me her input after reading it, along with a former relative (ex’s cousin) who is a highly regarded blogger (her son was born at 21 weeks, and they were told he would never see, or walk, but he is now 9, walks with a walking stick and even plays hockey – and she has blogged through it all) But I am really hoping that by doing this, it will inspire me to get on it, make the changes and start the process of self-publishing. Truth be told, I had not even LOOKED at the book for the last two years (not once) and have found myself pulling it out each night when I sit down to look at my blog, so that is a good step!:) And will happily let you be one of my guinea pigs when I get that done.

    Just wondering when my FULL-time job is going to notice I am NOT nearly as “involved”:( I work from home for an internet company and so it is REALLY hard to stay focused right now,

     
  6. Meg Lewellyn

    May 28, 2013 at 5:20 pm

    True that, although I have to say, that part of this NEW life I have made for myself it getting rid of those that judged:) Yippee, a LOT nicer that way:) How old are your boys?

     
    • Janet DiFolco

      May 28, 2013 at 5:33 pm

      Tyler is 10 and Noah is 5 going on 15. They are such unbelievable characters. Having to explain to them about MS has made it kind of like a comedy for me. I love their way of understanding things. It keeps everything in life a little bit lighter.

       
  7. Meg Lewellyn

    May 28, 2013 at 5:50 pm

    First Christmas I had MS – legs were wonkier than hell and I was exhausted from trying to keep up all the rituals I had developed (will NEVER know what I had been thing:) Kids wanted to bake and decorate holiday cookies. We had been at it for about 2 hours, I was standing in the kitchen area, behind the large island and the kids were on stools on the other side. All of a sudden, I felt my legs just slowly stop working….and so rather than a sudden fall and a thud, I slowly slipped out of sight, adding to it “I’m melting, melting, melting I say” (we were ALL big Wizard of Oz fans at that time, so hoped that would keep them from worrying.) I swear I lay on the kitchen floor for a good minute or two, not hearing a peep from any of them until Sam (9 at the time) came around to my side of the counter and said “uh, momma, do you want some help?” Ten minutes later they had me curled up on the couch, Piper (7) had poured me a glass of wine and Max (5) was curled up in my lap “reading” to me. That was when I figured out, best to always be “pretty honest with them , with a huge dash of humor.

     
    • Janet DiFolco

      May 28, 2013 at 5:53 pm

      LoL that’s fantastic! I already like your kids!

       
  8. objectpermanenceblog

    July 28, 2013 at 12:14 pm

    Thanks for your continuing support of my blog 🙂

     
  9. Melissa Bernet

    February 14, 2017 at 11:27 pm

    Hi Janet, I found your blog and wanted to reach out and wish you well!!!

     
    • Janet DiFolco

      February 15, 2017 at 6:55 am

      Thank you Melissa. I also hope that everything is going well with you! 🙂

       

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