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Hello Again

12 Nov

Why Hello Again!

Did you ever notice that throughout the day you have a million thoughts, that you think, WOW! This would make a great blog! But you never actually write it. You never even make it to a computer. Sure sometimes you write the thought down. Hell I have an entire section in the notes on my phone of future blogs that I want to write. I even bought a book of ideas to write about.

Yet here I sit, with nothing written.

So lets start, again.

I’m going to start with me. Just in case you are new here. 🙂

There are the usual boring things. I have 2 crazy boys, I’ve been married forever, and I live in the cutest old town with all of it’s dirty little edges.

What is on my mind right now though, I am on my local BOE. It has been a huge struggle. It has given me stress and happiness. Honestly though, most of the time I feel like I am working by myself. I am banging my head against a wall. Why is it that people say they care about something, go out of their way to be part of something, and then NOTHING! Why?!?

This is actually why I stopped writing. This blog is tied to my real name. So I am forever afraid that someone will read this and somehow I will get in trouble for what I write. There are so many rules. For some reason there are more rules and guidelines for the members of a Board of Education than there are for your local government. Thankfully there is also significantly more training in New Jersey for a Board member. That should say something fellow Jersians. There is a reason our Government sucks but we have the best schools in the country.

I just want people to care. I just want people who say that they care to actually care.

Alright rant over. 🙂

I started this blog as a way to talk about, vent about, dealing with this ridiculous disease called Multiple Sclerosis. My invisible monster. I hit my 100th Tysabri infusion last month. It felt like somehow I was getting somewhere. Just like when I was on Copaxone. When I finished a box of shots I got all excited. It felt like, Yes! I have accomplished something! I must be done now. This has to be over. I have made it to the end! Then the next box of shots shows up at my door. DAMN IT! Same exact situation with my infusions. Just last week I went to my 101 infusion. And being the Disney nerd that I am, I was upset that there were no puppies. Puppies seemed like the most appropriate way to celebrate my 101 infusion. But, no puppies. And I still have to go to my 102, and my 103, and so on.

Many more things catch my attention, drive me nuts, and make me laugh than my life with MS. This is my place to share those things with you. I hope you enjoy the crazy place that is my brain.

 
3 Comments

Posted by on November 12, 2019 in Life with MS

 

3 responses to “Hello Again

  1. Positively Alyssa

    November 12, 2019 at 10:08 pm

    Janet, I am glad you decided to start blogging. You will find many people out there can understand how you are feeling. I have been living with MS for almost 20 years and those years haven’t always been great. I know you already know living with MS can be challenging and often other’s just do not understand. I was young when diagnosed and at first, I didn’t want anyone to know about it. I started my blog almost 3 years ago and honestly, it was the best decision I have ever made. I am looking forward to reading more of your posts and I do hope if you have the time, you will check out my site. I do the best i can to spread positivity, but I also keep things very real and honest! I hope your week is going well and only gets better. Take care!!!!

     
    • Janet DiFolco

      November 13, 2019 at 6:56 am

      Alyssa, Thank you for the kind words. I have been living with MS for 9 years now. I find that I am a very lucky person in that department. All of my symptoms are invisible to the outside world. Well, until I try to put together a coherent sentence. 🙂 I do love to write and to talk to new people. I am very glad that you stopped by and reached out! I will definitely be checking out your blog. Thank you for sharing.

       
      • Positively Alyssa

        November 13, 2019 at 9:05 am

        You are more than welcome! I am also fortunate because most of my symptoms are invisible. Only those that know me can tell when I am in a lot of pain because I am pretty good at hiding it. I do hope you will enjoy my blog when you check it out. I hope you have a good day today!

         

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